Saturday, January 25, 2014

#life update

As I promised from the faces of 22q post, here is a life update.
 First of all, I like to thank everyone who has been reading my blog. Some have asked if my hubby has found work? The answer to that question is yes. My hubby sells hp products as a vendor rep. Meaning its a part time position with 32 hours and no benefits. He loves his job but cost to travel to stores he has to go to inst reimbursed there no benefits and it part time hours at 13 a hour. I am a tell it all kind of blog it maybe tmi but it is what it is and hubby is working. My daughter has ssi which went up after we moved into our two bedroom apartment. Hubby still looking for full time hours and benefits. My own health issues prevent me from working outside the home. I don't drive and to make life more interesting I am Canadian born and raised in Toronto, Ontario,Canada. Paperwork is at the half way mark of being completed once it is I need to get my last high school credit yes I am 30 but I was accepted into college for hospitality and tourism administration in Canada at the time they allowed age of maturity acceptance I also had a really great job in a hair salon as an apprentice. I met hubby online we met fell in love and I got pregnant with Isabella. I was 21 when I met him and 24 when I got pregnant. My husband has three kids shall I say teens now and I became a step mom before I became a mother.
Life hasn't always been kind or easy to me I am still trying to find my calling as I got sick over this summer I have been doing a lot of soul searching. I have a mallory wiese tear which took forever to heal up before the dr can move on to deal with the other issues which are gallstones, massive hitial hernia, gerd and I have a rare genetic disorder called digeorge syndrome,22q,vcfs. I also pass out not very often and its been able to be controlled and I have a lot of support and love however I am trying to cope with everything life has thrown at me. I began blogging to use as a journal and a outlet to help cope with the frustrations of dealing with everything on my plate. 
My blogging journey is just beginning I have met some amazing strong people and I continue to look forward to meeting others.
This week I see the dr and we will talk about date and time and surgery options now that my rounds of test have been done. The one the dr is sure I'm going to need is hitial hernia repair they wrap part of your stomach around your esophagus. I am working on cleaning and organizing life around here this weekend and planning to rest as much as I can this week yes even take down the tree and start decorating for valentines day. Slowly also saving up for the kids birthdays they have bdays all in April yep three in April including bella and one in June. Bella will be 7 and wants a bike to ride to school as its close by and something I can walk along side her with while keeping up her leg strength. We have her doing pt and ot and there is a ton of exercises she does to help her keep in great shape. 
Having a special needs child is a lot of work but mostly rewarding to know shes defying odds beyond drs expectations. Now to deal with the school and iep process were as easy as dealing with her medical issues we would be set.
Speaking of medical stuff I will share her medical binder in a future post this week maybe it will be for wordless Wednesday.
Thank you for reading and I enjoy reading other blogs so if you want me to read a post or follow you please message or comment to let me know. I can be found on twitter, Facebook ,pinterest, blog-loving,serve and so many other social sites.

36 comments:

  1. Nice to learn a little more about you Amanda. I also started blogging because of my health issues. When Drs couldn't help me, I turned to alternative healing and healed myself.

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    1. Thank you Terry for stopping by. I am a big fan of alternative medicine and self healing. I am looking forward to getting a date for sergury on the 28 we find out more. Hopefully before valentines day so I can eat chocolate again.

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  2. Nice to hear all about you! We all have our stories of our lives and that nobody is perfect and that is so interesting that your husband works for hp!

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    1. technically it's for marketsource so he sells as a vendor rep for them selling hp products. Hubby loves his job but wishes it was full time with benefits and more hours he's still looking for full time work and is over on Likend. Thank you for stopping by I appreciate every one of my readers. You are right Teresa no one is perfect and it's taken a lot of work for us to get to where we are at.

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  3. I'm glad that things are starting to look up for you all. Life has its ups and downs and it is important to roll with the punches when those things happen.

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    1. They sure are looking up. compared to last year we couldn't even get Christmas with out a lot of help this year we were able to do a small Christmas but it was our Christmas and it says something about our love and how strong it is when we can travel from our deep pits and stick together enjoying the rollercoaster ride we call life. It's meeting people who help along the way and with out knowing it we have seem to help some other people too and sharing this story is in hopes of giving hopes to others enduring what we did. thank you for your comments and I am enjoying your post as well.

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  4. you know me....I've been "following" you for quite some time...first in gather, then in facebook. I click over to these posts from the emails that I get from google+
    You are doing a great job with your blog.

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  5. I really do miss gather it seems sites where I am loving things that get gift cards they seem to dwindle down. you should see my up coming post I have set for Tuesday it's about the amazon deals I found and I used swag bucks to get them you would be proud I didn't spend a dime. lol
    I also been following you too and we have a ton in common.

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  6. We all have been in blessing and the first thing to really do is just to be thankful that even though its nothing perfect - everything is working out and this is how I see your life right now and it's all good. :)

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    1. Blessings we sure have lots of. Life other then my health issues is all good your right I shouldnt worrie so much but being a momma does that to you.

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  7. Thanks for sharing more about you and your life. It's good that you have someone who loves and supports you through all the things you have to deal with. Wishing you both the best. Hang in there

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    1. Thank you for the kind comment and for stopping by. Hanging in there is what we do best it seems.

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  8. Very glad to know that you are in Toronto.. I am always happy when I come across a blogger who lives in my area. I hope things turn out well for you and your family. Here's is to dreams coming true!:)

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  9. Thanks for letting us get to know you a little bit better! I'm so happy to hear that things are looking up a little.

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  10. Great to learn more about who you are, and how neat that you became a step-mom before you were a mom. I think that's really nice! I'm sorry to hear you got sick, I know that's not at all fun, esp. when it's longer than very temporary!

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  11. Thanks for telling us about yourself. Glad to hear things are better.

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  12. It's nice to hear a little about you! Glad to have met you and looking forwards to reading more :) I started blogging just to keep all my recipes in one place. Ha it's expanded. I'm sorry to hear your sick hopefully you get better soon!

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  13. I love reading about the lives of various bloggers. It's nice to know they're real people too, with real issues and problems, and not just a person bent on reviewing items of finding deals. I hope you get to feeling better soon!

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  14. I am glad to get to know you better. I am glad your hub found a job, even if it's only part-time. Hopefully soon they will move him up to full-time or he can find an even better job!

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  15. I am glad to hear your husband at least has a part time job. I know it is not ideal but something is better then nothing. As for your special needs daughter, may she continue to grow and impress you every day.

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  16. Thanks for sharing your life with us and sure hope you will get better soon and keeping you guys in our prayers.. Hoping that hubby will find a full time job as well.. I know it's rough but it will get better...

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  17. Glad to know that your husband found a part time job, will keep you and your family in our prayer.

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  18. It certainly looks like things are certainly turning around for you. Thanks for sharing and I hope things continue to go your way!

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  19. I hope things would turn for the better for you. I love reading your story. :)

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  20. Sorry to hear about the medical issues you are going through. Glad hubby got work. Hopefully he will be able to get more hours and benefits. Also looking forward to you getting your paper work done in terms of you staying in the states. Thanks for the update on everything. 3 of my cousins and my aunt all had their bdays in may so we would celebrate it on the last day of the month lol

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    1. yes we do that as well for bdays but the little one hers is on her day. or the weekend of it it is during the week. some times we go out to eat as a family and that is what they like better. I am more then half way I am at the I can stay in the country part but I have to finsih it up just a bit more to go.

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  21. I'm glad your husband found work. While it's not the ideal position, it's a start. They say it's easier to find a job if you have a job, so hopefully it will lead to better things.

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    1. He is grateful for this job means he can also go back to school and finish up his bachelors he was working on a double bachelors in computer networking and securities information systems. With his part time job and Bella's ssi it's like were living on one income right now.

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  22. When sharing about your life I don't think there is anything called TMI. This is your blog and you're allowed to share as much as you feel comfortable. I hope hubby is able to find a job he loves that gives him the benefits that you all need but I'm grateful he has one now. Here's praying that great things happen for you all this year.

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    1. I'm hopeful he's had some good interviews for full time positions and I'm always looking out for jobs in the Michigan area for him as well they say two eyes are better then none right.
      Thank you for your sweet comment.

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  23. Thank YOU for being so honest and sharing the difficulties and strengths in your life. Have you considered blogging to make some money from home? It may be a good idea since you can't work outside home for a while.. it takes some time to develop it, but if you buy a domain and work on metrics, you could make some money on the side. :)

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    1. I''m learning about metrics and how it all works out, learning the process and steps involved, I'm self learning, been looking for a domain name and finding a way to incorporate a donate button on my blog. Thank you for stopping by I appreciate it and the thoughts. I'm glad you like my blog and this post feel free to read the other post and come back often.

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  24. Wow it is so nice to see a REAL blogger! You hardly ever see a blogger that is so open! Blogging from home and making money is a really good option also!

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    1. I am looking into it as a option searching for domains and hosting and learning dream weaver as we speak.

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Amanda Ripsam