ABOUT ME

Hello everyone, Welcome.

My name is Amanda I was born and raised in Toronto, Ontario, Canada. I met my husband and that's how I ended up living in a small town in Michigan with my husband three step children who are young adults and our daughter who is 9. Bella is the name of our daughter and I blog about her and I here because we both have a rare yet common genetic disorder called 22q11.2 deletion syndrome. 

This site is a Lifestyle health and wellness resource written by a mom who is sharing hope, compassion and balance while living with Digeorge VCFS 22q11.2 deletion syndrome and raising my own family. This page you will find inspiring stories of hope and resources I have used. I journal on how or family copes with 22q deletion and multiple special needs as Bella also has a mild form of cerebral palsy and I have gasteroparises and 22q.  Other members of our family have their own health issues as well but I share about mine and Bellas as a way to cope and help others as I myself heal.

Will you join me on this journey and follow along ? I would love to hear your stories and comments.

There is a subscribe button on the top where you can enter your email so you don't miss out on any of my blog post.

Thank you so much for all of your support I hope this site serves as a tool to open minds and hearts.

Love Amanda

 

 

This is my family I'm in the back next to my husband in the white shirt and our daughter is the one petting the dog.

This is my family I'm in the back next to my husband in the white shirt and our daughter is the one petting the dog.

 

 

Thank you

Amanda Ripsam