My name is Amanda I was born and raised in Toronto, Ontario, Canada. I live in Kalamazoo, Michigan area with my husband and our family. I have one child with him and he has three kids.(young adults) we are the modern day blended family. with 11 years between my husband and myself
Bella is the name of our daughter and I blog about her and I here because we both have a rare yet common genetic disorder called 22q11.2 deletion syndrome.
This site is a Lifestyle health and wellness resource written by a mom who was struggling to find hope and is now sharing hope, compassion and balance while living with Digeorge VCFS 22q11.2 deletion syndrome
. On this page you will find inspiring stories of hope and resources I have used I write about what has helped and what has not helped along this journey.
I journal on how or family copes with 22q deletion and multiple special needs as Bella also has a mild form of cerebral palsy and I have gasteroparises and 22q. Other members of our family have their own health issues as well for example my mother inlaw has ms and will also start sharing her stories here on my website.
Will you join me on this journey and follow along ?
I would love to hear your stories and comments. I have a guest post page on my website and I would love to have more stories of how other people cope with life with multiple health issues.
There is a subscribe button on the top where you can enter your email so you don't miss out on any of my blog post. Next to the subscribe button is a contact me button where you can send emails if you are looking for support or have any questions. I love connecting with others.
Finally, I thank all of you for all of your support all these years and if you are new to the tribe welcome.
I hope this site serves as a tool to open minds and hearts.
Love Amanda and Bella