Hello, I am so glad you found us and this website.
Have you ever felt like you were on the outside looking in ?
That is how I felt being diagnosed with a rare genetic disorder called DiGeorge syndrome also refereed to as 22q11.2 deletion syndrome.
The reason DiGeorge is coined 22q is because it is a small missing piece of dna on the 22q chromosome. Imagine being told something is wrong with your body and there is no cure and hardly anyone knows what it is. That includes doctors teachers and other professionals.
I am 34 years old and look younger than I appear. I am often told I look no older then 15 and too young looking to have children at the age the kids are. Keep reading I share more about me in a minute.
My name is Amanda Ripsam
I was originally born and raised in Toronto, Ontario, Canada.
I live in Otsego, Michigan. We have 4 kids in total his three teenagers and our 9 year old Bella.
I share and our journey living with DiGeorge syndrome ( 22q11.2 deletion syndrome.
I have a unique perspective living with this syndrome as I have three siblings who also have 22q (short nickname) one of my siblings passed away when he was 6. I do not blog about my siblings or my father who has it but I do share the journey of what life is like raising Bella who is my reason I started this website.
I first started a blog called Mommies Quiet Place back in 2014 and now I have moved and grown so beyond what a blog could do and have turned into a parent mentor and advocate I am a stay at home mom first and work on my website during my free time. My husband also helps keep things running smoothly he has a background and a degree in It computer networking.
What is Mommies Quiet Place ?
Everyone has a background and something that is unique about themselves this is my story welcome to my 22q life.
Thank you for reading please don't forget to subscribe so you can stay up to date on the journey.