Educating Children with Velo-Cardio-Facial Syndrome (Also Known as 22q11.2 Deletion Syndrome and DiGeorge Syndrome) (Genetic Syndromes and Communication Disorders)
This is a book which I have found to be very helpful. Working with the teachers at my daughter school and in my personal life.
Velo-cardio-facial-syndrome, also known as 22q11.2 deletion syndrome and DiGeorge syndrome, is relatively new the genetic test to determine if a child has it has only been available since 1994. Educating Children with Velo-Cardio Facial Syndrome (also Known as 22q11.2 Deletion Syndrome and DiGeorge Syndrome), Second Edition, effectively blends the thoughtful research that has transpired within the past 15 years with practical and current educational strategies to better meet the needs of children with VCFS and other developmental disabilities.
To first address the scientific information that is needed to understand the syndrome and the implications of current research, expert contributors present the results of studies involving brain abnormalities, language/learning profiles and psychiatric/behavioral difficulties. These valuable chapters are written in a reader-friendly manner to help parents, professionals, and teachers gain useful and necessary comprehension of the unique characteristics of the VCFS population.
The second part of the book is a practical guide to educating a child with VCFS from birth through adulthood. Divided into the various stages of development from preschool to adulthood, it includes information regarding the necessary tests special education teams should run, typical difficulties associated with learning, changes that occur with ability as the child matures (drop in IQ scores and increased learning challenges), as well as behavioral problems in the school setting. Each section includes discussions of the learning challenges and accommodations that can be used at school and at home during that stage of maturity. The authors also present meaningful advice on issues such as friendships, private vs. public school placement, job training, and other pertinent decisions that affect the VCFS child's everyday life.
For the second edition, the author has added fresh and updated content. A partial list of new material includes:
The most recent research and studies to make the text as up-to-date as possible
Expanded and enhanced coverage of bullying and the social/emotional aspects of VCFS
More information on common core standards and standardized testing for children with disabilities
Homeschooling and other placement alternatives
Executive functioning deficits and their impact in the classroom
Dealing with problem behaviors
Issues related to anxiety and school success
Cognitive remediation and new treatment strategies
New math and reading remediation techniques
Expanded section on the very young child
With its expanded content, as well as contributions from some of the most highly regarded experts in the field, Educating Children with Velo-Cardio Facial Syndrome (also Known as 22q11.2 Deletion Syndrome and DiGeorge Syndrome), Second Edition is an essential resource for teachers, parents, physicians, and therapists of children with velo-cardio-facial-syndrome.