To the teachers who are teaching my child with 22q11.2 deletion syndrome IEP and hopes

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My 10-year-old is mainstream with an IEP has ADHD issues and attends multi appointments within a week sometimes two a week and misses school. truancy issue could be a concern, especially in the winter months when my daughter has fevers which often go unexplained. I have our journey on my website as a blog post because I want to share with the teachers what it is like first hand from a moms perspective raising a child who also has it and the many challenges and joys we face.

I am sharing this info because chances are if you are reading this you are Bellas teacher and I sent you to this page to understand what it is that Bella goes through and how it looks to help keep her as healthy as she appears.

Here is a list of Therapies my child needs in order to appear as healthy and happy as she seems to be 

Ot is short for Occupational therapy is a health and rehabilitation profession. Occupational therapists work with people of all ages who need specialized assistance to lead independent, productive, and satisfying lives due to physical, developmental, social, or emotional problems. It is do to these appoitments she does so well.

Pt is short for This is because Bella has Cerebral palsy and she has leg braces that she wears at night so we have to help with some of the spasms she has that used to keep her up nightly Bella takes a pain med and sees pain management as well.

Physical therapy is used to treat a variety of diseases and conditions using physical means, like stretching or exercise. It can help reduce pain and allows a gradual return to activities after illness, injury or surgery.  This helps with the leg spams that used to keep her awake at night and she used to Miss school do to screaming and crying in pain at all hours of the night do to leg pains. Since we started doing this stuff she has been on pain meds as well and she has had almost no issues at night except for very few. As long as we keep her active she does well

Physical Therapy Goals

  • Balance and coordination
  • Joint and muscle pain
  • Strength and endurance
  • Walking

Then we also do Speech Therapy

In a recent parent-teacher conference, maybe the teacher expressed concern that your child could have a problem with certain speech or language skills. Or perhaps while talking to your child, you noticed an occasional word not understood as clearly as peers her age.

It's wise to intervene quickly. An evaluation by a certified speech-language pathologist can help find out if your child is having problems. Speech-language therapy is the treatment for most kids with speech and/or language disorders.

Speech Disorders, Language Disorders

A speech disorder refers to a problem with the actual production of sounds. A language disorder refers to a problem understanding or putting words together to communicate ideas.

Speech disorders include:

  • Articulation disorders: difficulties producing sounds in syllables or saying words incorrectly to the point that listeners can't understand what's being said.
  • repetitions ("b-b-boy"), or prolonging sounds and syllables (sssssnake).
  • Resonance or voice disorders: problems with the pitch, volume, or quality of the voice that distract listeners from what's being said. These types of disorders may also cause pain or discomfort for a child when speaking.

Language disorders can be either receptive or expressive:

  • Receptive disorders: difficulties understanding or processing language.
  • Expressive disorders: difficulty putting words together, limited vocabulary, or inability to use language in a socially appropriate way.

I am looking forward to updating everyone on how the treatment and process go we had Bella do a neuro evaluation and that post is also on my website this is the follow-up plan and treatment which we will be doing to help her.

Monitoring of her IEP and goals is important so we can stay on top of her progress reports between the teachers and doctors.  I look forward to working with you as a team this year in helping Bella achieve her school goals and her grades. I do all I can and I am willing to come into the school and volunteer my time when I can help out let me know. Thank you for your time in understanding and I look forward to a great year.. I have included a notebook to send communication back and forth so we can work on any issues that come up.

I also request social to be kept this year and a freidnship group started so Bella can work on social cue issues so can get help with mataining and making new friends to have a more successfull time during school there for will be able to focus on her school work if she is not focused on aniexity issues that come from dealing with peers in her age group.

I am wlling to volunteer my time and come in the class room just request a day or two notice before hand. I am willing to help out with actives and filed trips. Just let me know how I can also help you.

Looking forward to a fantastic school year.

Love Bellas mom Aka Amanda