Meet and Greet With Rebecca Osberg
Meet and Greets are back by popular demand. I have had a lot of different people email me their stories and over time I will add a different story and feature one or two stories a month featuring someone with a genetic disorder rare or other wise such as 22q11.2 deletion syndrome. Here is another adult who is active in the 22q community who has a heart for spreading awareness for 22q.
Introducing Rebecca Osberg
My Story: Rebecca Crutchfield Osberg
I was diagnosed with 22q11.2 at age 38. However, I was born with 22q11.2. I have been in and out of hospitals from birth until young adult years. I was sick with Bronchitis , Pneumonia, ear infections, sinus infections, Asthmatic Bronchitis I have the low immune from 22q11.2. I also have CHD related to 22q11.2. I was born with a right sided aorta, VSD : Ventral Septal Defect, and heart murmur. At age 3 years old I lost many of my teeth , due to teeth crumbling from 22q11.2 , and on many antibiotics . I remember being in the oxygen tent many times. I used to get 9 shots a day as an infant and toddler. My dad bought my first teddy bear while I was in the hospital. Doctors offices and hospitals seemed to be my second home from infant to young adult years. Adult has slowed down some. I was the typical 22q baby, and no one new. In elementary, I was still sick with recurring ear infections, bronchitis, and pneumonia, and kidney infections. Still, in and out of doctors offices. School in early years was difficult, especially having a learning disability, and not even knowing about it.I had much trouble with reading and math. Especially basic math. My dad drilled me many times. It was very frustrating at times. In the summer, I had extra help with reading. In Junior High and High school, I still had trouble in basic math and science. The harder things seemed easier for me. I did great in Algebra and Geometry. In high school, I developed hyper nasal speech and tetany, however, my low calcium levels did not show up on lab work until about age 24.
I have now learned that lab works can be normal, and calcium can fluctuate. I had many nerve test done and no one knew what caused my hyper nasal speech.I finished high school with a B average, and after high school, went on to college to get my LPN degree. Passing was a B average. I passed nursing boards the first time. Getting my LPN license was my first biggest accomplishment, except for my first biggest, At age 13 , my strong Faith. I had trouble in Nursing jobs because of the low immune. I stayed sick, taking care of sick people. And, I had trouble with the social problems of 22q.11.2. I wish I knew then what I Know now about the ADA American Disabilities Act, and I could have received work accommodations. In young adult years, I developed Bipolar Disorder, and then Bipolar Affective Disorder, which is caused from 22q11.2. I am now medication controlled but have been in and out of many Counseling and hospitals. I have been in many traumatic and dangerous situations, because of not thinking clearly, cause from the emotional and social problems of 22q11.2 I was suicidal at the age of 13 and 18. However, at the age of 13, I wasn’t aware of what was happening. My third biggest accomplishment was marrying my husband Tim. We have been married 18 years this Oct.2nd. We were not able to have any children , I assume because of my 22q11.2. However, we have been active in our church with the Van ministry with kids , and Senior Saints, and in our community. Since being diagnosed with 22q11.2, it has given me closure. I found the diagnosis online, and I had one awesome Physician who listened to me and the test was 22q11.2. She has done the Fish test to determine. I have been doing activities to raise awareness since being diagnosed. I was first with Dianne Altuna and the VCFSEF organization, hosting walks at our local mall.
I received my first Resolution raising awareness for 22 q. I had many Proclamations and Resolutions done since them. I am now with the 22q International Foundation, and on the Ancillary Board. I have hosted many zoo events with the 22q International Foundation, met many Governor officials. I have my own Radio Show, with WJEC FM. 100.7 and, my own TV show; called 22Q Alabama and the Awareness Show, with channel 8 of Hamilton and starting with My Mississippi and Channel 49, hopefully soon. I have a hugely supportive family, immediate, and extended. I have 1 sister, and foster sisters, a host of Nieces and Nephews, awesome parents who have given their all for me and my husband. And many church family and friends. It is important to Raise Awareness for 22q11.2 because it is either diagnosed late in life or not at all. I do not want anything to face what I have faced. I have also been able to start a new non-profit for 22Q Alabama, and I was first appointed Deputy Commissioner Special Needs In the city of Sulligent Alabama, and now I am appointed Deputy Commissioner Special Needs in Lamar County Alabama. And it is an honor for the friends I have met all over the world. You are an inspiration.
Top left: Billy Rogers my Brother in law, my sister Tiffany Crutchfield Rogers, My Great Nephew
Mason Baughn, my Niece Kelly Baughn . Beside Kelly: Tristian Rogers and Jacey Rogers my nephews.
Anna Claire Baughn my Great Niece. Beside my sister is my Dad Kenneth Crutchfield, my Mom Patsy
Nolen Crutchfield, Rebecca Crutchfield Osberg beside my mom, and above me is my husband Tim