Mother, wife, step mom author lives in Kalamazoo, Michigan
22Q11.2 – RARE Champion in Advocating with rare genes
I am glad you found us
I share the journey of our life living with multiple health issues and having a genetic disorder called 22q11.2 deletion syndrome (DiGeorge) or 22q for shortMy story is about how one family copes with 22q11.2 deletion syndrome, cerebral palsy our daughter has dual diagnoses and other health issues that come from having a genetic disorder.I love connecting with other family's to share—the good, the bad and the unbelievably messy.
Read on for insight and advice from my personal first hand experience and connect with other moms who've been in the trenches.
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